[Magdalen] Fwd: not Anglican but (re: lymphoma)

Marion Thompson marionwhitevale at gmail.com
Thu Oct 19 17:41:10 UTC 2017


You are a blessing to us and I'm so glad that the pills are keeping you 
going.  I'm finding that tiredness is a very real part of the higher 
seventies!

Marion, a pilgrim


On 10/19/2017 1:33 PM, anthony clavier wrote:
> I was first diagnosed with Waldenstroms in 2005 when chemo was the only
> treatment. It returned again five years later and I had an autologous stem
> cell transplant. It returned early last year and I was put on Imbrovika. I
> take three pills at bedtime. It attacks the cancer cells but nothing else.
> The only side effects are brittle nails and tiredness. At 77, the latter is
> not unusual anyway and a good excuse for nodding of at Conventions and
> other pesky meetings. The drug isn't a cure but seems to work with a large
> percentage of patients even at the five year mark. It is not yet known how
> long the body will tolerate the drug or whether the cancer will become
> immune to it.
>
> Waldenstroms is such a rare cancer that it does not attract big bucks for
> research in our commercialized approach to medicine. Imbrovika was
> developed for leukemia and then discovered to work on Waldenstroms and
> multiple myeloma.
>
> Regards,
>
> +Tony
>
> On Oct 19, 2017 11:37 AM, "Marion Thompson" <marionwhitevale at gmail.com>
> wrote:
>
>> So far, the chemo is working very well on Jim's lymphoma and it is largely
>> gone, although the oncologist, finally seen again two weeks ago!, is still
>> interested in the bone marrow and will continue chemo for awhile.  Jim went
>> bald after chemo #2, but that's all -- nearly.  Some weeks back he had
>> trouble with the pikk-line, it seemed. Medics guessed at infection
>> (antibiotics) and then blood clot (blood thinners).   Finally the
>> oncologist's x-ray revealed a lymphoma-induced hairline fracture of the
>> shoulder, proximal humerus something.  Pins were inserted last week and he
>> was sent home the same night.  At least the grinding pain and weakness in
>> the arm have now ceased.
>>
>> Interesting to read of the T-Cell treatment.
>>
>> Marion, a pilgrim
>>
>>
>> On 10/19/2017 12:09 PM, ME Michaud wrote:
>>
>>> The perils of forwarding :-)
>>>
>>> All those T-cell studies are paying off.
>>> Before AIDS, the study of T-cells was a research backwater.
>>> -M
>>>
>>> On Thu, Oct 19, 2017 at 11:58 AM, Charles Wohlers <chadwohl at satucket.com>
>>> wrote:
>>>
>>> But it doesn't - there's an extra space in the URL. So, try this one:
>>>> http://tinyurl.com/y7cwr9vp
>>>> Or go to Channel 5 (wcvb.com) and do a search.
>>>>
>>>>
>>>>



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