[Magdalen] prayer request

[Ginga Wilder]

Thank you for 'getting this situation', Roger.  I have my internist's cell
phone number....rarely do I use it, but I have access to him.  He has my
history in his head.  While these break throughs my daily treatments are
serious and I feel awful when that is happening, nothing has ever come of
them.  This is a family thing -- early onset, resistant to treatment,
labile.  My aunt was dx at age 17, my father in his late 20s, my son (who
is in hospital) at age 22, and I at age 20.  The journey through has never
been fun but so far, no one has died of this.  My recent episode has lasted
much longer...2 months, but I feel it is abating.

I was diagnosed with autonomic malfunction 8-10 years ago when I had an
episode of syncope, fell and passed flat out at a conference I was
attending.  The ambulance came, blood sugar normal, blood pressure normal.
No transport.  A neurologist worked me up after that and gave the dx
autonomic malfunction.  To date, not much has been offered locally for this
disorder.  The MUSC clinic is relatively new.  I will be interested to know
what I am told.

TMI.
Ginga

On Thu, Aug 2, 2018 at 6:06 AM Roger Stokes via Magdalen <
magdalen at herberthouse.org> wrote:

> On 02/08/2018 10:34, Ginga Wilder wrote:
> > WNL: Within Normal Limits.  I am monitoring myself closely at home.
> When I
> > was in my earlier adulthood, I would go to the ER when my BP elevated to
> > extremes.  My experience is that ERs don't have my history and prefer to
> > 'watch me' until something happens or doesn't. (Nothing ever happened,
> > TBTG!)   I am able to rescue myself better at home with the medications I
> > have on hand.  I can get it down much better at home.
>
> That is the difficulty with either an ER or an Urgent Care Clinic. They
> know how to deal with a trauma situation such as broken bones or a heart
> attack but they don't have your medical history (unless you're on their
> "frequent flier" list) for conditions where that is important. The other
> thing about being at home is that being in the ER is stressful in
> itself, which will tend to raise blood pressure.
>
> > There is a brand new
> > autonomic malfunction clinic at Medical University of SC to which I have
> > been referred.  I am wearing a heart monitor right now and will have
> have a
> > nuclear stress test and echo cardiogram next week.  This roller coaster
> > will wind down sooner or later.  I have felt much better last night and
> > this morning...haven't put on the bp monitor yet, but I know it is down.
> That clinic sounds promising so I hope the referral comes through soon.
>
> Roger
>